hi..I am a fellow mom of a kabuki syndrome affected child. my son joshua is 10 you can read about him at http://www.myjoshua.piczo.com I look forward to reading more of your blog which I just found via a friend who posted it on facebook.
Hi, I also found your blog from a kabuki mom friend who posted a link on facebook. Your blog is great and your sweet girl is beautiful. I have a four and a half year old daughter who was recently "tentatively" diagnosed with kabuki syndrome. I also have a blog where you can read more about my Isabella: www.martyfamilyupdate.blogspot.com Thanks for sharing your story here. In this scary and lonely quest to diagnose and understand my daughter, it is through reading about and relating with families like yours where I find hope, inspiration, and comfort.
2 comments:
hi..I am a fellow mom of a kabuki syndrome affected child. my son joshua is 10 you can read about him at http://www.myjoshua.piczo.com I look forward to reading more of your blog which I just found via a friend who posted it on facebook.
Sophie
Hi, I also found your blog from a kabuki mom friend who posted a link on facebook. Your blog is great and your sweet girl is beautiful. I have a four and a half year old daughter who was recently "tentatively" diagnosed with kabuki syndrome. I also have a blog where you can read more about my Isabella: www.martyfamilyupdate.blogspot.com Thanks for sharing your story here. In this scary and lonely quest to diagnose and understand my daughter, it is through reading about and relating with families like yours where I find hope, inspiration, and comfort.
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