Showing posts with label Special Needs. Show all posts
Showing posts with label Special Needs. Show all posts

4.17.2011

Prepared

Standards of my car go-to kit!
  • Diapers (Nothing worse than needing one, and not having one.)
  • Wipes ... Hello!
  • Hand Lotion, especially during riding season her hands get really dry
  • Sun screen
  • Chapstick
  • Hair ties and clips
  • Extra clothes, including jeans in case I'm not prepared on horse riding days
  • Chewy Tube (never can have enough of those babies!)
  • Board books (always great for long car rides!)
  • SNACKS! Juice boxes, cereal, dried cranberries, & banana's these rotate of course otherwise I would need more car airfresheners :(
And after everything is assembled and placed in the container I can put it in the car so I'm ready for almost anything! Um... sneaky hands trying to steal the chewy uh....
Oh Baby Girl - you are sneaky and clever but I saw that!!!!
I like to be prepared ... what can I say :) You could call me a bag lady! I have bags for the gym for school, for afternoon therapies, church, & horse therapy.

2.17.2011

Changes

I spend several hours a week in waiting rooms, viewing room - enclosed rooms with a glass window- talking with parents. We talk about our children.

Not in the way other moms probably talk about their children...

I hear regular mom's talk about what their child accomplished today. How great they are doing in school. How many sports their playing.
Play dates.
A funny thing they said last night.
Their friends.
The list goes on...

But for Me - A Parent of a Special Needs Child - Conversations with other mothers in the similar boat usually consist of comparing meltdowns and calming down techniques.

Restaurants that have Gluten free/Dairy free options

Doctors we like and don't like

Specialists we've seen, or ask about medical challenges we may face in the future from parents with older kids who are infinitely wiser or better for the ware.

How lonely we are.

How difficult it is to deal with normal functioning children, who are of course perfect and we are reminded of that by their even more perfect parents...

I have decided to change my blog from simply recapping just my little family small events to a much more personal outlook on what it is really like being a parent of a special needs child.
I will try to be honest and open - which may not be pretty or easy to read. But I feel it is important, necessary even - too often I hear a sense of pity even sadness when people talk to me.

I hear all the time it is our responsibility as parents to bring 'Awareness' - I'm not entirely sure how to do that. Or exactly all that implies. But I do know that if individuals, who might read a blog, become more comfortable with children with special needs then it's worth a try.